Wednesday, May 14, 2008

Multiple Sclerosis Treatment – an Update


There is a recent comment posted to my blog of 18th February “
Multiple Sclerosis, Iguanas and Wrong Foot” that I would like to share with you all. The news that Sarah Longlands, the MS sufferer who was put on some pioneering drugs by her husband, is doing well is indeed heartening.

Sarah Longlands said ...

Dear Dr Zhang,My name is Sarah Longlands, the wife of Dr Wheldon, mentioned above. I found your blog by accident when looking up "David Wheldon" on Google, something I do from time to time to see who is linking to both our web sites.I thought I would give you a small update:nearly three years on again since the publication of "Ignoring the Evidence" I am still going strong, not having had an adverse MS event since starting treatment in August 2003. When I started I couldn't even hold a paintbrush but now I have worked through watercolours to acrylics and have now moved back to my favourite medium of oil paints and of no mean size. My progressive multiple sclerosis was so aggressive, I really shouldn't be here now, but I am.I have not seen my neurologist since being given the diagnosis. David has, since they work in the same hospital, but although at one point the man showed some interest, this soon passed and the man has never looked at my subsequent improved scans. In fact, he once ran out of the radiologists room exclaiming "I can't look at this!" He is obviously very good at saying "Never."There are always going to be people willing to put my recovery down to "spontaneous recovery" but I think it very odd that this should have happened within a few hours of downing my first ever doxycycline, after having my first multiple sclerosis relapse twenty years previously, age 24. Then and for many years it was untroubling, with few, easily resolved relapses. Over the years I had been able to forget about it, so I readily accepted the diagnosis of the orthopaedic surgeon. I have since discovered that David married me thinking I might well have MS, because of my clumsiness although by that time I has already decided that it couldn't possibly be the case.Since starting to recover, David has seen many patients abandoned by the neurological establishment and has written two papers with Charles Stratton of Vanderbilt University about chlamydia pneumoniae and multiple sclerosis. I started writing on http://www.thisisms.com, where a psychologist named Jim Kepner, a sufferer of another disease caused by chlamydia pneumoniae, saw me and started to treat himself. Two and a half years ago this led to him starting a wonderful site: http://www.cpnhelp.org where people from all over the world suffering from any of the many diseases in which CPn is implicated can come together for freely given help and reassurance.



Very best wishes,


Sarah Longlands. 12th April, 2008

Her neurologist reminds me of one well known psychiatrist who was very much against psychotherapy but prescribed ECT liberally instead. When asked about the correlation between straight ECT (electroconvulsive therapy) and fracture, his comment was something like: “I’ve never had a fracture, but I have never X-rayed any patient either.” You do not get what you do not look for – it is as simple as that!


In the meantime let the Iguana roam freely.


Buy the book: The Cockroach Catcher

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